The UK charity for Waldenstrom’s macroglobulinaemia – a rare type of blood cancer
Support Line: 0300 373 8500

Meet the others living with WM

There are just 4,000 people in the UK with WM and everyone’s story is a little different. Come and be encouraged by the stories of just some of those who are learning to live well with WM.

If you’d like to share your story, just get in touch. It will help to raise awareness of this incredible rare disease and encourage others on their own journey of living with WM.

Meet the others

Ellie's WM Patient Story

Ellie’s Story

Breathlessness and fatigue led Ellie to consult her doctor in 2019. She received a diagnosis just before the COVID-19 pandemic,...
Keith's WM Patient Story

Keith’s Story

Keith was diagnosed with Waldenstrom’s macroglobulinaemia at 67 after simple tasks left him exhausted. After a period of active monitoring,...
Peter's WM Patient Story

Peter’s Story

Peter's diagnosis of Waldenstrom’s macroglobulinaemia came unexpectedly after a routine blood test revealed abnormal results. Following active monitoring and later...
Rebecca's WM Patient Story

Rebecca’s Story

Rebecca, is a care home worker with Waldenstrom’s macroglobulinaemia, and was initially apprehensive about receiving the COVID-19 vaccine. She received...
Richard's WM Patient Story

Richard’s Story

Richard's was diagnosed at 62 after blurred vision and frequent infections, led him to seek help from the doctor. After...
Rob's WM Patient Story

Rob’s Story

Rob's Waldenstrom’s macroglobulinaemia journey began with unexpected breathlessness and muscle fatigue during a mountain hike. After a diagnosis and six...
Rory Morrison

Rory’s Story

Rory was diagnosed with Waldenstrom’s macroglobulinaemia, aged just 39. He hosted some of the first WMUK patient forums and become...
Vern's WM Patient Story

Vern’s Story

After a long struggle with misdiagnoses, Vern was diagnosed with Waldenstrom’s macroglobulinaemia when he was 53. Chemotherapy, left him with...
Vicky's WM Patient Story

Vicky’s Story

After 12 years of active monitoring, Vicky’s WM progressed to a point where she needed chemotherapy. She feared the worst,...
Bob's WM Patient Story

Bob’s Story

When former soldier Bob was diagnosed with Waldenstrom’s macroglobulinaemia in 2015 it came as an incredible shock. With his infectious...
Lucy's WM Patient Story

Lucy’s Story

In December 2017, Lucy noticed lumps behind her ears, leading to her Waldenstrom’s macroglobulinaemia diagnosis in June 2018. Feeling uncertain...
Mary's WM Patient Story

Mary’s Story

When Mary broke her ankle and shoulder, she was initially diagnosed with MGUS, a precursor to WM. When she underwent...
Karen's WM Patient Story

Karen’s Story

In April 2021, Karen's fatigue was, initially attributed a COVID-19 vaccination. Further tests led to a Waldenstrom’s macroglobulinaemia diagnosis. Initially...
Andy mcK

Andy’s Story

In November 2022, Andy began experiencing a range of symptoms including severe nosebleeds and debilitating fatigue. Despite multiple tests, his...
Komal, who was diagnosed with Waldenstrom’s macroglobulinaemia at 31 years old

Komal’s Story

I was diagnosed with Waldenstrom’s macroglobulinaemia at the age of 31. Lymphoma was significantly found in my bone marrow, and...