The UK charity for Waldenstrom’s macroglobulinaemia – a rare type of blood cancer
Support Line: 0300 373 8500

Preparing for TreatMent

Before you begin treatment you’ll need to make sure you’re physically and mentally prepared and also consider other practicalities like work and family responsibilities and logistics of getting to and from treatment sessions.

Physical prehabilitation

Keeping active and maintaining a healthy balanced diet will all help you prepare for treatment. All adults are advised to do 150 minutes of moderate exercise every week, but you can start with 10 minutes a day and build up.

Simple everyday activities like walking, gardening, or climbing stairs all count and strength-building exercises, such as yoga or light weightlifting, are also helpful. If you have peripheral neuropathy or issues with balance or movement, take extra care.

In addition to physical activity, try to eat a healthy diet. Aim for a variety of fruits, vegetables, proteins, and carbohydrates. Your appetite may change during treatment, so it’s a good idea to speak to your healthcare team if you struggle to eat or maintain a stable weight. Read more about eating healthily with WM.

prehabiliation

Mental prehabilitation

It’s normal to feel anxious or overwhelmed, before treatment. Your healthcare team and GP are there to support you and can provide useful links to services. Just remember to take things at your own pace, be kind to yourself, and lean on the support that’s available.

  • Mental health apps helpful for managing anxiety, depression, or sleep issues.
  • Support groups and talking to others who have been through WM treatment can provide valuable reassurance and practical advice.
  • WMUK offers online forums and local groups where you can connect with people who understand what you’re going through.
  • Talking to trusted friends or family members can also be a powerful tool in easing emotional stress.
  • Exercise is a helpful way to boost your mental wellbeing too.

Managing Work and treatment

It’s a good idea to talk to your employer before starting treatment. You might need time off for hospital appointments or because you’re not feeling well enough to work. You may also need to adjust how you work – for example, working from home or avoiding physically demanding tasks.

Everyone’s situation is different. Some people reduce their hours, while others take time off completely. If you do take time off, you might benefit from a phased return. Your healthcare team can support you with advice and, if needed, provide a letter for your employer.

Because you have cancer, you’re protected by law. This means your employer can’t treat you unfairly or discriminate against you because of your Waldenstrom’s macroglobulinaemia. You can learn more about your rights on the Acas website.

There’s also financial support available, whether you’re employed or self-employed. Find out more about working with WM.

Managing day to day life

When you are on treatment, your normal daily routine could be disrupted, especially if you need to go into hospital for tests or treatment itself. Taking care of these logistics before treatment begins can help you feel more in control and allow you to focus on your health and recovery.

  • Childcare – Have a backup plan for appointments or unexpected hospital visits.
  • Travel – Arrange transport and parking in advance.
  • Support – Decide if someone should come with you to your appointments.
  • Help at home – Ask for help with things like cleaning, cooking or shopping.
  • Pet care – Make sure someone can step in if needed.
  • Emergency bag – Keep a small hospital bag packed, just in case.

A little preparation can make a big difference when things get busy or unpredictable.