Support Line: 0300 373 8500
Many WMers struggle with their mental health following a diagnosis. It’s common to feel anxious, stressed, angry, sad or even depressed. Your emotions may also fluctuate as your condition progresses. The good news is, there is plenty of specialist help out there.
Everyone copes differently, but here are some supportive ways to help manage your emotional wellbeing while living with Waldenström’s:
Talk to someone you trust
Sharing how you’re feeling with a close friend or family member can help lighten the load. Letting others in gives them the chance to support you in the way you need — and it can make you feel less alone.
Connect with others who understand
Speaking to people who are going through similar experiences can be a huge comfort. Whether it’s through a Support Group, Facebook Community, our Support Line, or Coffee and Chat sessions, connecting with others who “get it” can help. Find support here.
Try mindfulness and relaxation techniques
Mindfulness, breathing exercises, or gentle meditation can help calm racing thoughts and reduce stress. These tools are especially helpful during times of uncertainty — like before a hospital appointment or scan. Take a look at our webinars.
Talk to your healthcare team
Don’t be afraid to bring up how you’re feeling emotionally at your appointments. Your team can suggest coping strategies, or connect you with mental health support if needed. Our Support Line can also help. Contact our Support Line.
Bring someone with you to appointments
Having a trusted person by your side can make medical visits feel less daunting. They can offer emotional support, help ask questions, and remember the information you’re given.
Learn more about your condition
Some people find that understanding more about WM and treatment options helps ease uncertainty. Reliable information can give you a greater sense of control and confidence when facing decisions. There’s plenty of info on the WMUK website.
Look after your body
What you do physically can have a big impact on how you feel emotionally. Eating well, staying active, and getting enough rest can all boost your mood — and may also help you feel more resilient. Learn more about exercise and diet.
Take it one day at a time
Thinking too far ahead can feel overwhelming. Try to focus on what’s in front of you today. Small, daily steps can be more manageable — and make you feel more grounded and in control.
If you are feeling very anxious or depressed, it’s important to speak to your healthcare team who will be able to refer you for additional support. .
A number of charities also offer specialised support to help people live well with WM
Our Support Line, run by an experienced WM nurse, is available throughout the week, for you. You can also email support@wmuk.org.uk and we’ll respond within 48 hours.
The WM Support Line is open
Monday to Thursday, 9am – 5pm
Useful links for people with Waldenstrom’s macroglobulinaemia who are struggling with their mental health.
