Support Line: 0300 373 8500
This year WMUK is bringing personalised patient support and expert information to your region.
Learn about clinical trials for Waldenstrom’s macroglobulinaemia, find out how to take part, & discover trials that are currently running in the UK
Waldenstrom’s macroglobulinaemia (WM) is a rare type of blood cancer. It has its own distinct characteristics that require specialised treatment and care. Our vision is that people affected by WM live longer, good quality lives supported every step of the way by WMUK.
We help people with Waldenstrom’s macroglobulinaemia (WM), a rare form of blood cancer, longer, better-quality lives.
We do this by providing essential resources for patients, families, and healthcare professionals. Whether you need to speak to a WM expert, want to learn about the condition or are a healthcare professional who wants to support a patient more effectively, we can help.
As the go-to source for WM clinicians, we work closely with the NHS and are leading the way in gathering data about the condition to improve understanding and treatment.
We’re here to help people with WM live longer, better lives — with WMUK supporting them every step of the way.
Want to understand more about WM and what to expect at each stage of your journey? With the help of WM experts, we’ve created a range of resources to guide you along the way.
We’re ready to help you live well with WM – whether you’re looking to join a Support Group, learn how to manage your symptoms, or get one-to-one advice through our Support Line.
Take a look around and explore all the extra information and support we offer. From details on the latest clinical trial to guidance for friends and family, you’ll find what you need right here.
Be the first to know about new resources, events and other WM by signing up to receive our communications.
The WMUK Board is responsible for the direction and governance of the organisation. Board members include experienced leaders and specialists who bring diverse expertise to steer WMUK towards achieving its mission.
The Patient Advisory Group (PAG) comprises 20 volunteers with direct experience of WM. Members review patient information, give feedback on new resources, and contribute to new programmes and long-term strategies.
WMUK’s core team manages the day-to-day running of the charity and its activities. The team develops resources, connects with healthcare professionals, produces information, and provides direct support to WM patients and their families.
This is a taster session run by Allen Kirungi-Enotu, project co-ordinator at the Voices of Hope charity. This is a breathing the course called ABC. If you then wish to complete the course this will be a 4-6 week course, 1 hour a week to be run with the charity. The following has been suggested to help with the session.
Straw, balloon, cotton wool ball, bubbles.
Website
Link to information on the course
Join to chat with other WMers about your experiences of fatigue, a common symptom of WM and its treatments. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes
More Info A 45 minute chair yoga session with Sue Jones, a British wheel of yoga teacher. This session will be gentle yoga and relaxation, with questions available to be taken by the facilitator. Please could we ask for you to be on a stable chair with water to hand if needed, for the relaxation you can be on a comfortable chair. You may need a blanket as your temperature could drop during this section. The session will be online and recorded for future use on the WMUK website.
Register Now Join to chat with other WMers about your experiences on coping with the summertime and the heat. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join Join nurses Sarah and Amber to talk about what information and support is available to you when and if needed. The role of the charity is to support people in person- led advance care planning and how to make you wishes known. Talking about the ways you can prepare for the end of life, specifically by documenting your wishes.
This can a very daunting subject at any time but with a cancer diagnosis this can be heightened. If you have any questions ready before the meeting please send them to me on carley.gray@wmuk.org.uk and I will forward them over, this can then be put in the agenda.
Join Join to chat with other WMers about your experiences. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join Join to chat with other WMers about your experiences. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join
The third part of WMUK’s regional patient summits for 2025 will take place in Belfast, Northern Ireland.
Full details of Northern Ireland WM Patient Summit are yet to be announced but you can register your interest on the link below.
More Info Join to chat with other WMers about your experiences of living alone. It’s a drop in event, so you’re welcome to come for the whole hour or just pop in for 5 minutes.
Join WMUK round-off 2025’s regional summits, with this event in Birmingham, England
Full details are yet to be announced but you can register your interest on the link below, or attend one of our other regional events in Scotland, Wales & Northern Ireland.
More Info
